31 Weeks

28 Weeks

MUSC update

So yesterday, Feb. 9, we made a visit to MUSC in Charleston. The pediatric cardiologist from Greenville wanted us to go down to meet with the MUSC cardiologist/surgeons for a second opinion and to have them take a closer look at Kirby’s heart. So, we began this journey at 8:00 am. We went back for an echocardiogram on Kirby’s heart yet another time….we should be pros at this by now. This took approximately 2 hours but thank goodness she was cooperative and they were able to see what they needed to see. Once the echocardiogram was complete we sat down with the cardiologist. She proceeded to confirm the previous diagnosis in which Kirby has an unbalanced Atrioventricular Septal Defect-complete.  We were informed that due to “unbalanced” ventricles of the heart (the left side being smaller than the right) surgery would be required during the first week of life. This would include delivery in Charleston with Kirby staying approximately 6-8 weeks after surgery in the NICU and to continue being monitored. The 2nd surgery would take place around 4-6 months of age and the 3^rd between 3-4 years of age. Many complications, possibilities, scenarios, cases, etc. were explained. With this being said, immediately after birth Kirby would go through extensive evaluations so they can get a better idea of the anatomy of her heart (as of now, they are looking though my body and her body and have little control over how she cooperates during each echocardiogram).  When we finished up with the cardiologist we were scheduled to meet for an ultrasound with the OB/GYN. Things were good there and all measurements were good. She now weighs 3lbs 6oz. We had a few minutes to grab lunch and then back to meet with the OB/GYN doctor to plan the delivery process in Charleston.  We are scheduled to deliver on April 9^th for a scheduled induction…………………………..

Finally our long day came to an end leaving us overwhelmed yet at peace with continuing to know God is control and has a plan in all of this. OUR plan was definitely not to deliver in Charleston, but rather with friends and family at home in Spartanburg.  We are not disheartened, we obviously want healing ASAP but we must understand that Our ways are not God’s ways, and Our plans are not God’s plans.   We will continue to stand on God’s promises and know God’s plan is perfect. We must be still and know that He is God. We will wait on him and follow any path He chooses to send us with joy in our hearts! We have done all we can for Kirby on this earth. We now have to be still and wait on God. Our faith has made her whole.  His word is true and will not fall void. Continue to pray for complete healing and wholeness of Kirby’s heart.