Friday, February 10, 2012

MUSC update

So yesterday, Feb. 9, we made a visit to MUSC in Charleston. The pediatric cardiologist from Greenville wanted us to go down to meet with the MUSC cardiologist/surgeons for a second opinion and to have them take a closer look at Kirby’s heart. So, we began this journey at 8:00 am. We went back for an echocardiogram on Kirby’s heart yet another time….we should be pros at this by now. This took approximately 2 hours but thank goodness she was cooperative and they were able to see what they needed to see. Once the echocardiogram was complete we sat down with the cardiologist. She proceeded to confirm the previous diagnosis in which Kirby has an unbalanced Atrioventricular Septal Defect-complete.  We were informed that due to “unbalanced” ventricles of the heart (the left side being smaller than the right) surgery would be required during the first week of life. This would include delivery in Charleston with Kirby staying approximately 6-8 weeks after surgery in the NICU and to continue being monitored. The 2nd surgery would take place around 4-6 months of age and the 3rd between 3-4 years of age. Many complications, possibilities, scenarios, cases, etc. were explained. With this being said, immediately after birth Kirby would go through extensive evaluations so they can get a better idea of the anatomy of her heart (as of now, they are looking though my body and her body and have little control over how she cooperates during each echocardiogram).  When we finished up with the cardiologist we were scheduled to meet for an ultrasound with the OB/GYN. Things were good there and all measurements were good. She now weighs 3lbs 6oz. We had a few minutes to grab lunch and then back to meet with the OB/GYN doctor to plan the delivery process in Charleston.  We are scheduled to deliver on April 9th for a scheduled induction…………………………..
Finally our long day came to an end leaving us overwhelmed yet at peace with continuing to know God is control and has a plan in all of this. OUR plan was definitely not to deliver in Charleston, but rather with friends and family at home in Spartanburg.  We are not disheartened, we obviously want healing ASAP but we must understand that Our ways are not God’s ways, and Our plans are not God’s plans.   We will continue to stand on God’s promises and know God’s plan is perfect. We must be still and know that He is God. We will wait on him and follow any path He chooses to send us with joy in our hearts! We have done all we can for Kirby on this earth. We now have to be still and wait on God. Our faith has made her whole.  His word is true and will not fall void. Continue to pray for complete healing and wholeness of Kirby’s heart.


  1. I have obviously been very behind and unaware of what y'all have been, josh and Kirby are in my thoughts and prayers. God does have a wonderful plan for miss Kirby and His grace will see each of you into and thru His plans. Much love to you!

  2. Hi- Scotti Henson referred me to your blogspot. Just wanted to let you know that my little boy had open heart surgery at MUSC when he was 7 months old. I believe that God has provided the doctors there with the skill they need to provide a miracle. Years ago our little ones would not have had a chance, but through God's grace he lays the skill in the hands of the docs at MUSC. Here is my miracle... Also, if you have any questions you can email me at Remember that you are a special person- God has chosen you to be the parent of this little one who needs extra care. We are the lucky ones in God's eyes. I know it may be hard to see now. By the way, there is a lady I work with who is having a little one at MUSC in Charleston on April 22. Your babies will be there the same time. If you like maybe I could get you her email, etc.