Monday, April 30, 2012

Monday update

What a big day we have had! Kirby's chest was closed today! Praise the Lord. She has had an open chest since her surgery 2 weeks ago. This is longer than the norm but with her being put on the ECMO machine and her swelling, it has taken longer. Josh and I are getting a good lesson in patience and trusting God completely. Kirby has done great so far and we know she will continue to do so. She is a fighter for took 2 doses of the paralytic medicine to knock her out for surgery....after one dose she just kept looking around like it was nothing. Josh said she gets it from me but I am not too sure. Ha! Thank you for your continued thoughts and prayers. We miss everyone back home so much but know we are now one huge step closer to being home. We have a long way to go but our prayers continue to be for a speedy recovery that will amaze the doctors. Our next steps will be getting off the ventilator, umbilical lines out and she still has had no food :(.....and of course getting to hold our baby girl (we have only held her twice since birth). The word is that feeding can be difficult with these babies since they have not had to use there suck/swallow reflex yet. We pray this goes smoothly with no complications. They will begin with very small amounts through her NG tube and then progress to "real" feeding. We love you all and thank you for your thoughts and prayers. We definitely feel them!


  1. Praying for all of you! Sent an email with your blog link to the SLPs of D5 today.

  2. Just wanted to say Praise the Lord!!! You all are in my prayers and will see you next week if Miss. Kirby is still in PCICU. Charlotte is scheduled for surgery Wednesday. We may try and visit with you in PCICU waiting on Tuesday if we can get by there during our Pre-op. If not I will definately look for you Wednesday, I am looking forward to meeting you:)