Since the last post the goal for Kirby has been simple yet complicated....GROW! She has done just that at a pretty good rate but not without lots of small hurdles. There have been many issues with her NG tube which is supposed to now be TP (below the belly). This has been difficult b/c it has worked its way out of that postition, Kirby has pulled it out of that position, and for unknown reasons is difficult to get to that position after each time it comes out. They have had to re-insert the tube multiple multiple multiple times which means tearing the tape off her face and holding her down and she hates it! She has been a trooper but bless her heart she has been through it. Currently we are waiting until in the morning for them to reposition it b/c it is in her belly right now instead of TP. Kirby has gain weight fairly quickly (4.64 kg- 10 lbs 3 oz as of this morning) with her goal being 5.0 kg so she can have her next surgery and recover and come home.
Last Saturday, North Point Church hosted a benefit in Kirby's honor. What an amazing blessing this was! This consisted of a hot dog lunch, silent auction and raffle in which great businesses and individuals contributed, donated, and supported. The turnout was great and they exceeded their goal and expectations. We were fortunately able to surprise everyone and come home to be a part of the benefit....which they totally did not expect. We are truly grateful for all the hard work and support of everyone involved. God truly showed himself strong in this benefit.
We have had lots of firsts lately....Kirby now likes to lay on her belly and sleeps great that way. She fell asleep on Josh's chest as he layed back on the bed which he has longed for all of her life and she fell asleep on my chest and slept there for hours as I rocked her today which I have longed for all of her life. She is holding her head up very well when she sits up too! Continue to pray for weight gain and good health so we can get her well and home!